Today is a holiday, Valentine’s Day, and many are enjoying dates with their partners and the thrill of a special evening approaching. However, I will be honest that that is not my reality today. Why? Because, I am sick today. My chronic illnesses are in a flare. So, I thought I’d give you a look at what that is like for me, instead of pretending that my life is roses. This entry is not meant as a pity party, merely to give the average healthy person a glimpse into my world.
I have been diagnosed with what is casually known as “the trifecta.” This includes hEDS (hypermobile Ehlers-Danlos syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast Cell Activation Syndrome). I encourage you to Google them, because these are complex chronic illnesses that have no cure, and make the lives of those who suffer from them pretty damn miserable! Basically, I struggle with a multitude of symptoms, including chronic fatigue and chronic pain. I take 20 medications a day in an attempt to manage the symptoms, but nothing is super effective. These medications also include the ones I take for my mental illness diagnoses. However, I have written previously about my chronic mental illness diagnoses, and they are not the topic of this post.
I began having health problems as a child, and I have always been “sickly.” It has been a long journey of tears, unsuccessful treatments, surgeries, trips to the ER, and doctors telling me that I was crazy before I finally got the correct physical diagnoses. They came from a combination of an Integrative Medicine doctor in Northampton, MA and a few specialists in Boston, MA. The trip to reach answers was long and difficult.
Once I was properly diagnosed, I had a lot to process. On the one hand, I was relieved, and on the other hand, I was completely overwhelmed with facing what I now knew would be a lifetime of being sick. In early 2025, I began seeing a health psychologist for a special kind of therapy to help me learn how to live better and cope with the new knowledge. He has been extremely helpful. However, it has also been a challenging process to relearn how to balance my daily activities so as to better preserve my health.
You see, I have always been an active person. I have always enjoyed setting goals for physical activities and participating in charity walks. As a younger person, I rode horses competitively and did jumping at horse shows, as well as dressage. I once dreamed of being a horse trainer. In addition, I had a passion for running as a young woman and enjoyed lifting weights at the local gym. My attitude was always to push through and keep going.
BUT, as I have progressed through life, so have my illnesses progressed. All of those activities I loved to do my body can no longer support. Not surprisingly, this has left me with a ton of mental grief to process, and a lot of anger. So, now we come to the reason for the photograph I chose for today’s entry, which is me walking with my cane. Thankfully, I do not need the cane every day yet, but I do need it more and more. In addition, I occasionally have even needed a walker when in a really bad flare of illness. I have just turned 39 years old, and this seems incredibly unfair to me!
How do I cope? Not great. Honestly, I have to spend a lot of time lying on the couch or bed and simply resting. Netflix and my DVD player have become necessities. I will say it: I hate resting. I crave a busy and productive life, and I wish my body would let me do more. I’m no expert still on living with chronic illness and dealing with the physical and mental pain. I just keep going. I keep putting one foot in front of the other and being grateful for the good days when I get to accomplish something meaningful.
For example, I transferred to Westfield State University in the Fall 2021 semester, after not doing college course work for 14 years. It has been difficult, but I have now completed 11 courses at WSU with an overall GPA of 3.8. In addition, I enjoy volunteering at my local church. This year there was a high of being a worship leader for the Christmas Eve service. Mission work for the less fortunate in our society is also a passion of mine, and I feel fulfilled when I can help local charities. And, family and friend time is precious to me. I love to be social, even if it means resting afterwards. All of these blessings make my life purposeful.
I encourage you to be grateful, just as I try to be grateful, for the wonderful moments in life! We all struggle with something, and the best comeback is to see how God has blessed us. I try to be positive, even when it’s rough, and know that I’m never alone. My family, friends, and Faith guide me through. May my story inspire you to see your own strengths inside the struggle, and NEVER give up!!
With Resilience, G.





